Premilla D'Cruz's Family Care in HIV AIDS PDF

By Premilla D'Cruz

This e-book vividly describes kinfolk care in HIV//AIDS during the lived reports of caregivers and care receivers. It contributes to our wisdom not just a result of modern relevance of relations caregiving, but in addition as a result of its concentrate on HIV//AIDS which, being a comparatively new sickness, is little understood but poses precise demanding situations as a result of its stigmatising, long-drawn, debilitating and terminal nature. in response to a learn carried out in Mumbai, family members Care in HIV//AIDS captures the lived reviews of 10 caregivers and 7 care receivers belonging to diversified socio-economic teams and standard in addition to non-traditional kin settings. total, the e-book presents worthwhile insights right into a variety of significant matters regarding caregiving in kinfolk settings whereas deciding upon components for intervention and additional examine. moreover, it overcomes many gaps pointed out within the great zone of relations care through Western researchers.

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Example text

Even though you may not be already sick, you are dangerous to yourself and to others, and you know neither when nor how you will fall ill. As a result, certain risks must be managed in a situation of uncertainty (Pierret 2000). The shadow of stigma is never far from HIV/AIDS, arising from its initial associations with ‘risk groups’, from its sexual mode of transmission, from its contagious nature and from its fatal consequences (Cargan and Ballantine 2000). Stigma has brought to light numerous complex issues, such as the importance of confidentiality, the management and consequences of secrecy, the biases within society and within the health profession, the limits on positive people’s expectations of care and support and the pain of experiencing discrimination.

When one parent dies in a nuclear family, there is usually no one to look after the other parent and siblings (some of whom may be infected) and in these cases, children assume adult roles (D’Cruz 2001; UNAIDS 2000, 2001a; UNAIDS/UNICEF/USAID 2002). This is a version of skip-generation parenting, which involves parentification of youth (Campbell 1999). No one knows how many children act as primary caregivers, but they are believed to constitute a significant number (UNAIDS 2000). HIV/AIDS is increasingly challenging dominant conceptualisations of childhood, particularly the notion of children as dependent, passive and non-productive.

Easing spousal burden implied diminished demands placed on the caregiver including minimising inconvenience, contributing to managing the household, protecting from fear and frustration, and working towards a speedy recovery. Keeping us up prevented the patient and partner from preoccupation with negative feelings through the balancing of mood and the adoption of a positive attitude. Considering spouse expanded patients’ self-focus to include consideration of spousal perspective and needs by recognising the impact on the partner, seeing the spouse’s perspective, exhibiting thoughtfulness and sensitivity, and encouraging spousal independence.

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